Unexpected findings in identifiable stored blood samples after analysis without consent: moral arguments for and against disclosure.

by: MF Verweij, BC Hamel

Genet Couns, Vol. 13, No. 2. (2002), pp. 115-121.

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Obtaining informed consent for using blood samples in research is mandatory. However, sometimes no consent is obtained for analysis of identifiable blood samples in a second study. As a result, a moral dilemma raises in case a possibly pathogenic mutation is found. Should the involved person be informed that such a mutation has been detected? We present a case in which this problem occurred and discuss arguments for and against information disclosure.

@article{citeulike:236140, abstract = {Obtaining informed consent for using blood samples in research is mandatory. However, sometimes no consent is obtained for analysis of identifiable blood samples in a second study. As a result, a moral dilemma raises in case a possibly pathogenic mutation is found. Should the involved person be informed that such a mutation has been detected? We present a case in which this problem occurred and discuss arguments for and against information disclosure.}, address = {Department of Ethics, Philosophy and History of Medicine, University Medical Center Nijmegen, The Netherlands.}, author = {Verweij, M. F. and Hamel, B. C. }, citeulike-article-id = {236140}, issn = {1015-8146}, journal = {Genet Couns}, keywords = {recontact}, number = {2}, pages = {115--121}, posted-at = {2005-06-24 18:20:49}, priority = {2}, title = {Unexpected findings in identifiable stored blood samples after analysis without consent: moral arguments for and against disclosure.}, url = {http://view.ncbi.nlm.nih.gov/pubmed/12150210}, volume = {13}, year = {2002} }

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TY - JOUR ID - citeulike:236140 L3 - citeulike-article-id:236140 TI - Unexpected findings in identifiable stored blood samples after analysis without consent: moral arguments for and against disclosure. JF - Genet Couns VL - 13 IS - 2 SP - 115 EP - 121 AD - Department of Ethics, Philosophy and History of Medicine, University Medical Center Nijmegen, The Netherlands. SN - 1015-8146 N2 - Obtaining informed consent for using blood samples in research is mandatory. However, sometimes no consent is obtained for analysis of identifiable blood samples in a second study. As a result, a moral dilemma raises in case a possibly pathogenic mutation is found. Should the involved person be informed that such a mutation has been detected? We present a case in which this problem occurred and discuss arguments for and against information disclosure. KW - recontact AU - Verweij, MF AU - Hamel, BC PY - 2002/// UR - http://view.ncbi.nlm.nih.gov/pubmed/12150210 ER -

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